Respite care provides time off for family members who care for someone
who is ill, injured or frail.
What is respite care?
Caregivers face many challenges. Caregiving is a demanding task, and it is easy
to neglect your own health and well being when you are involved with your loved one's needs. Caregivers need time off
from their caregiving responsibilities to relieve stress and prevent burnout. Effective, sustainable caregiving depends on
meeting the caregiver's own needs for nurture, reassurance, support and periodic respite.
Respite
care provides time off for family members who care for someone who is ill, injured or frail. It can take place in an adult
day center, in the home of the person being cared for, or even in a residential setting such as an assisted living facility
or nursing home. Although there are different approaches to respite care, all have the same basic objective; to provide caregivers
with planned temporary, intermittent, substitute care, allowing for relief from the daily responsibilities of caring
for the care recipient. Respite care is essential for all caregivers, whether they work in a caregiving facility or at home
with family members or close friends.
Types of respite care available to seniors
Respite care is provided in a variety of ways. Most typically,
someone comes to the home and sits or cares for the family member. Depending on the level of care needed, the respite care
person may need different skills. Some facilities such as nursing homes or assisted living offer to house and care for a family
member for a day, a weekend or when the caregiver takes a vacation. In addition, if your family member is mobile, an adult
day care center once or twice a week provides a good respite for a tired caregiver.
Dangers of burnout
Caregivers are at increased risk of depression and other symptoms of distress. Perhaps
you feel guilty because you think you aren't doing enough, and you're frustrated that you can't do more. If you're
feeling depressed, anxious, or overwhelmed, that's understandable - this is a difficult time for you…and help is
available.
The symptoms of burnout are very similar to those of depression. In fact, the two
conditions often contribute to one another. Are you experiencing:
- Persistent
symptoms of depression
- Constant anxiety, irritability, or anger
- Feelings
of detachment, numbness, or exhaustion
- Continuous self-criticism
- Withdrawal
from usual activities
- Negligence or hatred of caregiving responsibilities
- Trouble at work or in relationships
- Substance abuse
A recent study in the Journal of the American Medical Association has shown that seniors providing care for an ailing
spouse are likely to become sick more often and experience more stress than similar people who aren't caregivers. Make
sure that you get regular medical checkups. If you have any symptoms of depression (extreme sadness, trouble concentrating,
apathy, hopelessness, or thoughts about death), see a doctor right away. Depression is an illness that can, and should, be
treated.
Care for the caregiver tips
Here are ways you can care for yourself while caring for others.
- Schedule regular afternoons or evenings out.
- If you can't
leave and friends can't come over, take time each day for a phone conversation with a friend or family member. Even a
brief chat can lift your spirits.
- Eat nutritious meals. Don't give in to stress-driven
urges for sweets or drink too much alcohol.
- Get enough sleep. If you are kept up at night,
try a nap during the day to make up some sleep.
- Exercise regularly, even if it means finding
someone else to provide care while you walk or go to exercise class.
- Make a list of jobs you
need help with and seek out someone to assist you. This could include household chores, home repair or maintenance, driving,
paying bills, or finding information on services you need.
- If possible, arrange for adult day
care for your loved one. This will you give you time for errands and personal time as well as provide health monitoring, transportation,
nursing care and therapeutic recreation for your care recipient.
- Join a support group. You
don't even have to leave the house for meetings. For homebound caregivers, Internet-based support groups are a blessing.
- Draw strength from your faith. Even home visits from a member of your church or synagogue are
a way to keep you in touch.
- Take time to pamper yourself. Take a warm bath, light candles…find
a time to relax each day.
- Plan a weekend getaway or a weeklong vacation.
- Hire a temporary caregiver from a respite care program.
Questions to ask about respite care programs
- How are care providers screened?
- What is the training and level of experience of the care providers?
- Will care providers
need additional training to meet specific family needs?
- How, and by whom, are the care providers
supervised?
- What procedures does the program have for emergencies?
- Are
families limited to a certain number of hours of services?
- Does the program provide transportation?
- What is the cost of services? How is payment arranged?
How can support groups help?
Caregiver support groups can help alleviate the stress and strain of caregiving.
Support groups allow you to meet others in situations much like yours. You can talk, vent, and exchange tips and hints with
people who understand. For those who cannot easily leave home, there are online message boards and forums that can provide
much-needed support.
Respite care provides a break for you and care for your loved one. With respite
care, you can feel safe leaving your loved one while you run errands, shop, or just relax; more extensive respite care can
allow you to continue working outside your home or help you juggle caring for your children and an elderly adult.
Above all, remember to keep in touch with yourself. If you are sick, exhausted, or overworked, you can't provide
good care for anyone. Caregiving is an act of love, but is also a demanding, challenging job. No one can handle it alone.
Getting help for yourself is one of the best things you can do for your loved one, and it will enable you to keep giving top-quality
care.
If you neglect yourself, you are putting your loved one at risk - taking time for yourself
will also benefit your care recipient.
To learn more: Related Helpguide Articles
Helpguide’s
series on Senior Housing & Care | |
References and resources for respite care
Other related links
An informative guide about taking care of oneself is offered through the Family Caregiver Alliance.
A respite caregiver checklist helps the temporary caregiver learn about the care of their recipient's needs
Respite services categories are explained on this site from Alzinfo.org.
Fact sheets and publications about respite concerns on the national level are provided by the Arch National Respite Network and Resource Center.
National Respite Locator Service - Provides a searchable database to find respite services by state, local area, and by specific needs. (ARCH National Respite
Network)
Teresa Modnick, Gina Kemp, M.A., and Monika White, Ph.D., contributed to this article. Last
modified on: 1/30/08.